Fighting neurodegenerative diseases One Step at a Time
Fighting
neurodegenerative
diseases One Step
at a Time
MY NAME IS SANDY HAHN and I’m living with Multiple System Atrophy. MSA is a rare, progressive neurological disease with no cure. When I was diagnosed with this fatal disease, doctors didn’t expect me to still be here.
I am. And I’m getting better.
OUR CAUSE
Multiple System Atrophy is a rare and relentless neurological disease; and for most people living with it, hope can feel out of reach.
This community exists to change that.
Sandy was diagnosed with MSA and made a decision early on: to live openly, share everything, and refuse to let this disease have the final word. What’s working, what isn’t, what the medical establishment isn’t saying, and what patients and caregivers deserve to know. it all lives here.
Bring hope. To everyone touched by neurodegenerative disease from patients, family members and friends, to the caregivers who give so much of themselves, this is a place to find someone who gets it, and proof that life with MSA can still be full.
Raise awareness. MSA and other neurodegenerative diseases are under-researched, under-recognized, and too often misunderstood, even by the people diagnosing it. The more voices we add to this conversation, the harder it becomes to ignore.
Share what’s working. Since his diagnosis, Sandy has been able to reduce or eliminate many of the symptoms he was told he’d have to live with... and he’s still improving. On his YouTube channel and in the 'Sandy Recommends' section of this site, he shares exactly what he’s doing, what’s helping, and what hasn’t been worth it. No filter, full transparency, and always with the reminder that he IS not a doctor.
Fund access to treatment. Sandy has been fortunate to access treatments, including Ibogaine therapy, contrast therapy, and adaptive fitness, that have meaningfully changed his quality of life. Not everyone can. We’re working to change that, one person at a time.